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Research Resources

NOTE: The links provided below will take you to external web sites over which the PPRL has no control. The Periodic Paralysis Research Library provides the following list of resources strictly as a convenience for the public and vistors to the PPRL web site. Please review our disclaimer regarding external links.

ACADEMIC RESOURCES
	Karolinska Institute
	Neuromuscular Disease Center (NDC): Washington University, St. Louis, MO
	NDC - WUSTL - Ion Channel Diseases
	Penn State University Medical Library
	HHMI Biointeractive On-line Teaching Resources
	Diffusion and Use of Genomic Innovations in Health and Medicine - National Academies Press - Lyla M. Hernandez - 2008
	DNA Interactive at HMI
NATIONAL INSTITUTES OF HEALTH
	ClinicalTrials.gov
	Genetics Home Reference NLM
	National Human Genome Research Institute (NHGRI)
	National Institute of Neurological Disorders and Stroke
	National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
	National Library of Medicine (NLM)
	National Library of Medicine Resources for Researchers
	NCBI new website
	Office of Rare Diseases Research
	U. S. Department of Health and Human Services National Institutes of Health
	NCBI - An Introduction to Molecular Biology Resources
	NCBI - Diseases Caused by Altered Ion Channels
NATIONAL and INTERNATIONAL NON-GOVERNMENT ORGANIZATIONS
	American Association of Electrodiagnostic Medicine
	Diseases, Disorders and Related Topics
	European Neuromuscular Centre
	Genetic Alliance
	Malignant Hyperthermia Association of the United States
	MDA: Focus on Periodic Paralysis - MDA Quest 2009 - This is a large file (61 mb) and can take a few minutes to load.
	Movement Disorder Society
	Muscular Dystrophy Association
	Myoclonus Research Foundation
	Myositis Association of America
	National Organization for Rare Disorders
	United Mitochondrial Disease Foundation
	World Muscle Society
	GENE TABLE of Neuromuscular Disorders
PATIENT SAFETY & THE IMPROVEMENT OF HEALTH CARE SYSTEMS
	Agency for Healthcare Research and Quality
	Five Steps to Safer Health Care
	Patient Safety Network: Agency for Healthcare Research and Quality
	Summary of HIPAA Privacy Rule
	To Err is Human: Building A Safer Health System
	6 Secrets to Getting the Right Medical Diagnosis - Deborah Kotz - 12/12/2009
	Improving the Health Care System
	CAHPS User Resources - Improving the Quality of Healthcare
PROFESSIONAL SUPPORT RESOURCES
	E-Medicine
	SimuConsult
	Periodic Paralyses from E-medicine
	Treatment for periodic paralysis: from the Cochrane Library - Sansone V, Meola G, Links T, Panzeri M, Rose MR
SUPPORT AND SELF-HELP GROUPS
	Myotonia Congenita Support Page
	The Periodic Paralysis News Desk
	Periodic Paralysis Association